Thursday, July 23, 2009

More doctors, more tests...

Update- Aiden had a minor surgery on Monday to determine the cause of his belly issues. They scoped him and biopsied his esophogas, stomach, colon, and rectum. We have yet to get the complete results but they did find evidence of a milk/protein intolerance. I have stopped nursing and am weaning myself off of the pump. It was a sad and difficult decision but the Lord has given me a peace about it. He is a different baby on the formula- doesn't cry all the time and actually sleeps! (I really didn't know that babies aren't supposed to cry ALL the time- I have never been around a "normal" (not sick) baby!)
Abigail went to the neurologists on Wednesday for her arching and her neck. She only turns her head to one side and always has her head overextended and her back arched severely. The neurologists said she has torticolis- the muscle is too short in one side of her neck and she will need physcial therapy. She also has Plagiocephaly- her cranium is assymetrical. You can physically see it even- one ear is further up than the other. He ordered a CAT scan to check for tumors and and neurological damage from seizures, ect. and to see if her skull is fused together yet. If it is- we have a more serious problem. If not, she can wear a special helmet to help correct it. He really didn't have a clue on the arching of her back.
Please pray the the CAT scan comes back normal, that her arching is nothing and will resolve itself, that her neck is easily fixed, and that the assymetry would be correctable. Pray for Aiden that his results come back normal.

"Blessed is the man who perseveres under trial, because when he has stood the test, he will recieve the crown of life that God has promised to those who love him."
James 1:12


Janine said...

Katie--have peace about the torticollis, this is definitely something that PT can help (advice from one!) I am anxious to hear about the remainder of the neurology report and hopeful that the plagiocephaly is merely secondary to the torticollis. You are so brave and so strong--and my prayers continue to be with your family.

Danny and Jennifer White said...

My heart hurts for you guys right now.I have been and will continue to pray God's blessings and peace over your family.

Aunt Lisa said...

yes, we will pray for you, Ben, and your precious twins.